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Events
"Cindy Parseghian came to me in 1994 saying, 'I will not let my children die without a fight.' She was determined to raise money to further NP-C research. I realized this was a natural fit--our research institution supporting a foundation whose goal was to find a treatment for a rare disease. It is such a noble and worthy cause." - Greg Pivirotto, University Medical Center (Tucson) President and CEO, Title Sponsor of the "One More Victory, Ara!" Celebrity Golf and Gala Weekend |
Upcoming EventsJuly 23-24, 2010 A Kick off Dinner will be held on July 23rd at the La Paloma Country Club, Tucson, AZ to celebrate the partnership with the University of Notre Dame’s Center for Rare & Neglected Diseases and the Desert to Dome Bike Ride. On July 24th, Notre Dame College of Science Dean Greg Crawford and his wife Renate will be taking up the cause of the Ara Parseghian Medical Research Foundation by beginning their bicycle journey from Tucson, AZ, to South Bend, IN – 2200 miles!! The Crawfords are undertaking this symbolic cross-country venture in order to raise awareness about NPC, to demonstrate Notre Dame’s commitment to this new partnership, and to raise funds to find effective treatments. According to Dean Crawford, “We are riding for the Parseghian family, the children who have lost their battle with NPC, and the children and families still fighting for a cure.” The Crawfords will be making many stops along the way and visiting with ND Clubs. For more information call the Foundation (520)577-5106 or email: promano@parseghian.org or visit http://niemannpick.nd.edu/. August 4, 2010 - The 4th Annual "Irish Legends" Golf Tournament, dinner and auction at the Lost Dunes Golf Club in Bridgman, Michigan to benefit the Lou Holtz Foundation and the APMRF. For information contact Angela Monger at (800) 628-9922, ext. 503 August 21, 2010 - The 3rd Annual BReaK Thru Fund Golf Outing to support Niemann-Pick Type C Disease Research. This event which includes an 18 hole scramble golf tournament, lunch, dinner, and auction is being held at the Lafayette Elks Country Club in West Lafayette, Indiana. Contact Trent Smith at info@breakthrufund.org for more information. September 24th & 25th, 2010 -The Annual Scientific Conference On Niemann-Pick Type C Disease at the Westin La Paloma Resort & Spa in Tucson, Arizona. Contact Susan McDonald at smcdonald@parseghian.org for more information.
Recent EventsJuly 12, 2010 - The Notre Dame Club of Milwaukee's 10th annual "Ara's Outing" at the Westmoor Country Club in Brookfield, Wisconsin. For information contact Tom or Terry Mulcahy at (800) 711-6132. May 14th & 15th, 2010 - The 15th annual “One More Victory, Ara!” Celebrity Golf and Gala Weekend Presented by University Medical Center at The Westin La Paloma Resort & Spa in Tucson. For more information call the Foundation office at (520) 577-5106. May 1, 2010 - The Catalina Foothills High School Student Council in Tucson, Arizona hosted their 6th Annual "One More Victory, Ara!" Walk/Run at the Rillito Park. For information contact Lizzy Roman at rlizzie@cox.net. April 5, 2010 - "The Battle of the Bend, Silver vs. Gold Baseball". The battle between the ND Fighting Irish vs. South Bend Silver Hawks will take place on April 5th at 5:30 pm, Coveleski Stadium. A portion of the proceeds to benefit APMRF. January 23, 2010 - Every January the local community of friends, benefactors, and businesses in Las Vegas, NV come together to honor and support 12 year old Ty Quandt through a benefit concert and silent auction called "Touchdown for TY". This year marks the fifth year of this fun-filled event. For more information go to: www.touchdown4ty.com or call Verna Burrows at 702.363.5443. November 20, 2009 - Pearls for a Cause, a special promotion at Tiffany & Co. at Tucson's La Encantada shopping center, in support of the Ara Parseghian Medical Research Foundation. For more information call Peg Romano at (520) 577-5106 October 9, 2009 - An event in honor of Ashton Friedl - "It Comes in Pink" event will be held at The Cultural Arts Center at Glen Allen, VA. For more information visit www.itcomesinpink.org. October 1-4, 2009 - Tucson Originals, a group of local, independently owned restaurants presents the seventh annual “Tucson Culinary Festival”, Tucson’s premier food and wine event with proceeds to benefit APMRF. Held at Loew’s Ventana Canyon Resort in Tucson. August 5, 2009 - The third annual “Irish Legends” Golf Tournament at the Lost Dunes Golf Club in Bridgman, MI . For information on this fun golf outing, dinner and auction contact Angela Monger: (800) 628-9922 Ext. 503. August 15, 2009 - “BReaK Thru Fund Golf Outing” hosted by the Smith Family was held on August 15, 2009 at Lafayette Elks Country Club in Lafayette, IN. Call Trent Smith for information: (765) 477-3410. July 13, 2009 - Notre Dame Club of Milwaukee’s "Ara’s Outing 2009", Westmoor Country Club in Brookfield, Wisconsin. Contact Tom or Terry Mulcahy: 1-800-711-6132. May 8, 2009 - Fiesta Fantastica at La Encantada in Tucson, AZ sponsored by Tucson Lifestyle and La Encantada, and presented by Chapman Automotive. A festive evening of delicious food, beverages and music to benefit the APMRF.
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