"Cindy Parseghian came to me in 1994 saying, 'I will not let my children die without a fight.' She was determined to raise money to further NP-C research. I realized this was a natural fit--our research institution supporting a foundation whose goal was to find a treatment for a rare disease. It is such a noble and worthy cause." - Greg Pivirotto, University Medical Center (Tucson) President and CEO, Title Sponsor of the "One More Victory, Ara!" Celebrity Golf and Gala Weekend
May 4, 2013
The fifth annual event held in honor of Ashton Friedl will for the second time be the “It Comes In Pink – PinkNic”. Held at the Richmond International Raceway in Richmond, Virginia this event promises to be a great afternoon for the entire family! For ticket information go to: www.itcomesinpink.org
June 12, 2013
The seventh annual Irish Legends Golf Tournament will be held at the Lost Dunes Golf Club in Bridgman, Michigan. Legends Ara Parseghian, Lou Holtz and current fighting Irish football coach Brian Kelly support this wonderful golf outing that supports their foundations. For information contact Angela Monger at (800) 628-9922, Ext 503 or firstname.lastname@example.org
June 13-15, 2013 -
The annual Michael, Marcia & Christa Parseghian Scientific Conference for Niemann Pick Type C Research will be held on the campus at the University of Notre Dame from June 13th through June 15th. For more information go to:
March 17, 2013
Athlete Bill Keen, sidelined by a foot injury, was not able to fully compete in the Ironman Competition in November as planned. However, he is determined to achieve his original goal to raise funds for the three Irish Legends coaches; Coach Parseghian, Coach Holtz and Coach Kelly and their respective foundations and has committed to competing in the Ironman Triathlon on March 17th in Los Cabos, Mexico. Please consider supporting Bill in this ambitious endeavor! For information contact Bill at (219) 381-6852 or go to IrishLegendsIronMan.com.
January 26, 2013
Verna Burrows and friends in Las Vegas, Nevada are hosted the eighth annual “A Touchdown for Ty” at the College of Southern Nevada. This event was held in honor of Verna’s grandson. It was a family oriented variety program with a silent auction and reception. For more information contact Verna at (702) 363-5443.
Thursday Dec 6th, 2012 at 7:30 pm ET on ESPN
Coach Ara Parseghian was awarded the Contributions to College Football Award. This award will be presented by the National College Football Awards Association and will be aired live on ESPN during The Home Depot College Football Awards.
August 4, 2012 - The fifth annual BReaKThru Fund Golf Outing was held at the Lafayette Elks Country Club in Lafayette, Indiana. Hosted by the Smith family this event was held in honor of their 3 NP-C children, Braden, Reilly and Keaton. The proceeds from this event support NP-C research at Purdue University. For information contact Trent Smith at: email@example.com
May 22 - June 22, 2012 - Greg Crawford, Dean of Science at the University of Notre Dame is completed his third annual bike ride for NP-C. He began in Boston, Massachusetts and ended in Southern California… covering more than 3000 miles while visiting NP-C families and Notre Dame Clubs along the way. To follow Greg’s ride visit his blog at: http://blogs.nd.edu/gregcrawford/blog/
June 7-9, 2012 - The annual Michael, Marcia & Christa Parseghian Scientific Conference for Niemann Pick Type C Research was held on the campus at the University of Notre Dame from June 7th through June 9th. Researchers and NP-C family members will attend 2 full days of presentations, discussions and collaborations on the latest developments in NP-C research.
June 22-24, 2012 - The Parseghian Classic, a 3 day golf tournament took place at the magificient Pebble Beach Golf Resort. Golfers played a round of golf at The Links at Spanish Bay and another at the Pebble Beach Golf Links. Visit www.niemannpick.nd.edu for more information or call Cristi Ganyard at (574) 631-3070 or firstname.lastname@example.org
June 25, 2012 - The sixth annual Irish Legends Golf Tournament was be held at the Lost Dunes Golf Club in Bridgman, Michigan. Legends Ara Parseghian, Lou Holtz and the current fighting Irish football coach Brian Kelly all participated. For information contact Angela Monger at (800) 628-9922, Ext 503 or email@example.com
May 12, 2012 - It Comes In Pink “PinkNic” was held on May 12th from 11am – 4pm at the Richmond International Raceway in Richmond, Virginia and will include a BBQ, live music, and fun for the entire family! For more information visit www.itcomesinpink.org.
January 21, 2012 - 7th annual "A Touchdown for Ty" benefit concert and silent auction was held in Las Vegas, NV. Every January the local community of family, friends, benefactors, and businesses come together to honor and support 14 year-old Ty Quandt. For more information go to www.touchdown4ty.com or call Verna Burrows at (702) 363-5443.
August 6, 2011 – Hosted by the Smith Family in honor of their three children with NP-C, the fourth annual “BReaK Thru Fund Golf Outing” was held on August 6th at the Lafayette Elks Country Club in Lafayette, IN. For more information contact Trent Smith at: firstname.lastname@example.org
September 30, 2011 – Organized by family and friends of Ashton Friedl, the third annual “It Comes In Pink” event was held at the Children's Museum of Richmond, VA downtown location. For more information contact Kevin Currie at (804)427-5962.