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Newsletters & Videos"A Goal For Life"The Ara Parseghian Medical Research Foundation Newsletter |
 
-World Rare Disease Day Video
-Legacy of Hope part 1 -Legacy of Hope part 2 -NBC Sports: Ara Parseghian Interview -Legacy of Hope part 1 -Legacy of Hope part 2 -NBC Sports: Ara Parseghian Interview -A Helping Hand: Amy Grant part 1 -A Helping Hand: Amy Grant part 2 -20/20: Parseghian Family Story part 1 -20/20: Parseghian Family Story part 2 -From the Heart - part 1 -From the Heart - part 2 -Regis and Kelly: Parseghian Foundation -Today Show: Cindy Parseghian & Andrea Marella -Tribute to Notre Dame's Ara Parseghian by Packers' Clements -Tribute by Notre Dame's Terry Hanratty to Hall of Fame Coach, Ara Parseghian 
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We invite you to read our newsletter, "A Goal For Life", which provides quick and easy access to information about what's new at Ara Parseghian Medical Research Foundation, research updates, fundraising stories and features about NP-C patients and families. To the left, you can view videos that include messages from Cindy Parseghian and an interview with Ara Parseghian.
Winter 2009 Newsletter Heartfelt Thanks The Notre Dame Club of Milwaukee hosted the ninth annual “Ara’s Outing 2009” in Brookfi eld, WI this past July. More than a dozen from “The Era” travelled to Milwaukee to honor Ara. 150 alumni and friends – including 13 Irish football players from the period of 1964- 74 – joined in the festivities at the beautiful Westmoor Country Club on Monday, July 13 to raise money for the Ara Parseghian Medical Research Foundation (APMRF). Standing in for the Hall of Fame coach who was unable to attend, alumna and daughter-in-law, Cindy Parseghian, the APMRF’s president, thanked the attendees for the Club’s nine years worth of contributions, saying that it has accounted for more than $150,000 toward research to fi nd a cure for NP-C.
Summer 2009 Newsletter NP-C Annual Scientific Conference In June, eighty researchers from around the
world convened a meeting to discuss the
advances in Niemann-Pick Type C (NP-C)
disease research. These meetings were funded
by generous grants from the Bacon Family
Foundation and the C. R. Bard Foundation, Inc.
In addition to the research presentations spanning
Spring 2009 Newsletter Zavesca Approved in Europe The APMRF has been intimately involved in helping to
fund and speed development of the drug Zavesca, which
led to a clinical drug trial. We are very excited to announce that Zavesca has been
approved for treatment of patients with NP-C disease in
Europe. Our hope is that the Food and Drug Administration Through funding provided by the Parseghian Foundation, Dr. Steven Walkley of Albert Einstein College of Medicine
in Bronx, NY administered Zavesca to NP-C mice. He
found a positive affect and after a number of years, this led
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