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Newsletters & Videos"A Goal For Life"The Ara Parseghian Medical Research Foundation Newsletter |
 
-World Rare Disease Day Video
-Legacy of Hope part 1 -Legacy of Hope part 2 -NBC Sports: Ara Parseghian Interview -Legacy of Hope part 1 -Legacy of Hope part 2 -NBC Sports: Ara Parseghian Interview -A Helping Hand: Amy Grant part 1 -A Helping Hand: Amy Grant part 2 -20/20: Parseghian Family Story part 1 -20/20: Parseghian Family Story part 2 -From the Heart - part 1 -From the Heart - part 2 -Regis and Kelly: Parseghian Foundation -Today Show: Cindy Parseghian & Andrea Marella -Tribute to Notre Dame's Ara Parseghian by Packers' Clements -Tribute by Notre Dame's Terry Hanratty to Hall of Fame Coach, Ara Parseghian 
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We invite you to read our newsletter, "A Goal For Life", which provides quick and easy access to information about what's new at Ara Parseghian Medical Research Foundation, research updates, fundraising stories and features about NP-C patients and families. To the left, you can view videos that include messages from Cindy Parseghian and an interview with Ara Parseghian.
Winter 2011 Newsletter “Gratitude makes sense of our past, Dear Friends,
NP-C Scientific Conference Highlightsby Drs. Pam Tamez and Kasturi HaldarThe annual Michael, Marcia and Christa Parseghian Scientific Conference for Niemann-Pick Type C Research was held at the University of Notre Dame on June 9-11, 2011. Over 80 researchers and NP-C family members were in attendance for two very full days of presentations of the latest research developments, discussions and collaborations. The endowed conference will be held yearly at the University of Notre Dame. The 2012 meetings will be held June 7-9. We wish to thank Pam Tamez and Kasturi Haldar from the University of Notre Dame Center for Rare and Neglected Diseases for the following highlights of this year’s conference.
Winter 2010 Newsletter Annual Scientific Conference on Niemann-Pick Type C DiseaseThe annual Scientific Conference on NP-C Disease was held at the Westin La Paloma Resort & Spa, Tucson, AZ on September 24-25, 2010. Over 65 researchers were in attendance for two very full days of presentations of the latest research developments, discussions and collaborations. Next year’s conference will be held at the University of Notre Dame on June 10 – 11, 2011. We wish to thank Dr. Suzanne Pfeffer for the following highlights of this year’s conference.
Summer 2010 Newsletter Ara Parseghian Medical Research Foundation Enhances Partnership with Notre DameBuilding on a long-standing relationship with the University of Notre Dame, we are pleased to announce the Ara Parseghian Medical Research Foundation has strengthened its partnership with the University in order to support and advance research initiatives to find treatment options for Niemann-Pick Type C (NPC).
Spring 2010 Newsletter “Hoops for Hope”. . . Competing together for a cause . . .
In the weeks leading up to the annual boys basketball game
between rivals Harrison High School and West Lafayette
High School in West Lafayette, IN, the two schools join together
Winter 2009 Newsletter Heartfelt Thanks The Notre Dame Club of Milwaukee hosted the ninth annual “Ara’s Outing 2009” in Brookfi eld, WI this past July. More than a dozen from “The Era” travelled to Milwaukee to honor Ara. 150 alumni and friends – including 13 Irish football players from the period of 1964- 74 – joined in the festivities at the beautiful Westmoor Country Club on Monday, July 13 to raise money for the Ara Parseghian Medical Research Foundation (APMRF). Standing in for the Hall of Fame coach who was unable to attend, alumna and daughter-in-law, Cindy Parseghian, the APMRF’s president, thanked the attendees for the Club’s nine years worth of contributions, saying that it has accounted for more than $150,000 toward research to fi nd a cure for NP-C.
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