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We invite you to read our newsletter, "A Goal For Life", which provides quick and easy access to information about what’s new at APMRF, research updates, and stories about those affected by Niemann-Pick Type C disease.

Spring 2008 Newsletter
A Legacy of Hope
Dear Friends,
Hope springs eternal, and the seasonal promise of new life is especially poignant for children and families impacted by Niemann-Pick type C.

Looking back, we find it hard to believe that it has been 14 years since our children were diagnosed with NP-C; while sometimes it seems like a lifetime, often it feels like only yesterday. And though Michael, Christa and Marcia are no longer with us, we can still hear their wonderful laughter, see their sparkling eyes and feel their little arms hugging us. While we miss them unbearably, they inspired a legacy of hope.

Read the Complete Spring 2008 Newsletter

Winter 2007 Newsletter
Seasons Greetings
To our many friends who are helping us bring hope to these and all NP-C children and families around the world.

Building Important Therapeutic Collaborations
In its commitment to finding a treatment and cure for NP-C, the APMRF is building partnerships and developing collaborations with implications for all genetic neurodegenerative diseases.

One such APMRF-funded collaboration project is the team comprised of Frederick Maxfield, Ph.D., Chairman of the Department of Biochemistry at Weill Medical College of Cornell University in New York, Paul Helquist, Ph.D. and Olaf Wiest, Ph.D., Professors in the Department of Chemistry at University of Notre Dame, and Steve Walkley, D.V.M., Ph.D., Professor of Neuroscience at the Albert Einstein College of Medicine.

Read the Complete Winter 2007 Newsletter