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Niemann-Pick Type C is a genetic, cholesterol storage disorder that primarily strikes children with death occurring before or during adolescence. There is also an adult onset form of the disease. The Ara Parseghian Medical Research Foundation is a non-profit organization dedicated to funding medical research projects to find a treatment for Niemann-Pick Type C (NP-C) disease. The Parseghian Foundation is named in honor of Ara Parseghian, the much beloved and well-known Notre Dame Football Coach, whose three youngest grandchildren were diagnosed with NP-C in 1994. Medical research is the key to saving the lives of all those around the world afflicted with Niemann-Pick disease. You can help by donating to the Ara Parseghian Medical Research Foundation. Thank you.
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April 5, 2010 - "The Battle of the Bend, Silver vs. Gold Baseball". May 14th & 15th, 2010- The 15th annual “One More Victory, Ara!” Event
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 Our hearts are broken. The pain of losing our three youngest grandchildren is almost unbearable.
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Krissie's Kritters - Parseghian Children Christmas ornaments
Niemann-Pick Type C (NP-C) disease Research News
One Family’s Fighting Spirit - Read The Parseghian Family Story
More About Niemann-Pick - Read an overview of the disease diagnosis, symptoms and treatment.
Research on NPC -Articles on Potential Therapies
Contact us about getting involved in the fight against Niemann-Pick disease. 
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A Message From Cindy Parseghian Dear Friends, I find myself reading often the following quote I keep on my desk by Robert H. Goddard: “The dream of yesterday is the hope of today…and the reality of tomorrow.” Looking back, we find it hard to believe that it has been 14 years since our children were diagnosed with NP-C;...read more
Their resolve, however, to continue the fight against NP-C disease is not broken. The Parseghians and thousands of volunteers and friends across the US and around the world are raising funds and pushing medical research so that a treatment can be found. Please help us in this valiant effort so that everyone afflicted with Niemann-Pick around the world can live to realize their hopes and dreams. Thank you. 
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