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The Ara Parseghian Medical Research Foundation is a volunteer non-profit organization dedicated to funding research projects to find a treatment and cure for Niemann-Pick Type C disease (NP-C) and related neurodegenerative disorders. Named in honor of Ara Parseghian, the much beloved and well-known Notre Dame Football Coach, whose three grandchildren were diagnosed with NP-C. Research is the key, and you can help by donating to the Ara Parseghian Medical Research Foundation. |
![]() April 19, 2008 - Catalina Foothills HS Student Council in Tucson will host their 4th Annual "One More Victory, Ara! 5K Walk/Fun Run." |
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![]() Our hearts are broken. The pain of losing our three youngest grandchildren is almost unbearable. ![]() |
Niemann-Pick Type C disease (NP-C) Research News
One Family’s Fighting Spirit - Read The Parseghians’ Story
More About Niemann-Pick Type C - Read an overview of the disease discovery, symptoms and treatment.
Research on NPC
Contact us about getting involved with the fight against NPC. ![]() |
June 5-7, 2008 April 25-26, 2008
![]() Niemann-Pick Type C disease (NP-C) is a genetic, pediatric, neurodegenerative disorder. It is responsible for the build-up of cholesterol in cells, resulting in eventual damage to the nervous system. This metabolic disorder leads to a series of neurological problems that are ultimately fatal. We Need Your Help!
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