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Join us in the Fight Against Niemann-Pick Type C Disease |
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ResearchScientific Conference on Niemann-Pick Type C Disease |
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Regretfully, the Ara Parseghian Medical Research Foundation will not be hosting a Scientific Conference on Niemann-Pick Type C Disease in June 2010. We are exploring options for a meeting in the Fall and will post our decision soon. 2009 Scientific Conference on Niemann-Pick Type C Disease was held in Tucson, Arizona on May 28-30, 2009 at The Westin La Paloma Resort & Spa. Read conference highlights in this summer's newsletter. Mike Parmacek, Scientific Advisory Board, Director writes... It has been my pleasure to serve as
the Director of the APMRF SAB for the past fifteen years. While
we have made great progress in understanding the cause of NPC
disease, I recognize that progress can never come fast enough for
children afflicted with NPC disease and their families.
Nevertheless, I am confident that the APMRF has explored every
reasonable avenue of investigation and someday these efforts
will lead to successful therapies, and ultimately a cure, for NPC Our greatest success has been attracting world-class medical
researchers to focus their efforts on NPC disease research. When
the foundation was established, I never dreamed that we would
attract this quality of scientist to work on an orphan disease. On
multiple occasions, internationally recognized scientists attending
the APMRF Scientific Meeting have commented on the remarkable
quality of science and research presented at our meetings. This is
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