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Please note that the dates and location of the 2010 Conference has been changed:

The 2010 Annual Scientific Conference on Niemann-Pick Type C Disease will be held at the Westin La Paloma Resort & Spa in Tucson, Arizona on September 24th & 25th, 2010.

Click here for Conference Registration Form.

Please complete and email or fax the form to Susan McDonald:

Fax#: (520) 577-5212

Email: smcdonald@parseghian.org

Click on the link below to reserve your room at La Paloma Resort & Spa:

Starwood Meeting Reservations

2009 Scientific Conference on Niemann-Pick Type C Disease

was held in Tucson, Arizona on May 28-30, 2009 at The Westin La Paloma Resort & Spa.  

Read conference highlights in this summer's newsletter.

Mike Parmacek, Scientific Advisory Board, Director writes...

It has been my pleasure to serve as the Director of the APMRF SAB for the past fifteen years. While we have made great progress in understanding the cause of NPC disease, I recognize that progress can never come fast enough for children afflicted with NPC disease and their families. Nevertheless, I am confident that the APMRF has explored every reasonable avenue of investigation and someday these efforts will lead to successful therapies, and ultimately a cure, for NPC
disease. The APMRF SAB has tried to balance fundamental basic research into understanding the molecular and genetic basis of NPC1 and NPC2 protein function with applied research screening for drugs and compounds that may be therapeutically beneficial.

Our greatest success has been attracting world-class medical researchers to focus their efforts on NPC disease research. When the foundation was established, I never dreamed that we would attract this quality of scientist to work on an orphan disease. On multiple occasions, internationally recognized scientists attending the APMRF Scientific Meeting have commented on the remarkable quality of science and research presented at our meetings. This is
testament to the quality of the APMRF, members of the APMRF SAB who have reached out to friends and colleagues, and the medical research community at large who have rallied behind this cause.

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