A Goal For Life
The Faces of NPC
Quote from ara
Video 1

OnlineVideos

VTESSE VTS-270 Clinical Trial

ND Cycling Team raising money

YouTube-Celebrating Ara's 90th B'Day

Survivor Tales
Legacy of Hope part 1

Legacy of Hope part 2

University of Notre Dame: Fighting For The Lives Of Children

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Partnership with University of Notre Dame

 

The University of Notre Dame has launched the Ara Parseghian Medical Research Fund which will take on the administrative functions of the foundation including fundraising, recruiting of researchers, grant administration, marketing, interaction with NP-C families, and hosting of the annual science conference. The Parseghian Family will continue to be intimately involved with the fundraisng efforts and will act as advisors to the new fund. A great deal of attention has been focused on this transition to ensure that the work we started over 22 years ago continues advancing the field of NP-C research.

We hope you will continue your support of the Ara Parsehian Medical Research Fund. For more information visit niemannpick.nd.edu

 

 

 

Upcoming EventsJune 24-27, 2016
The fifth annual Parseghian Classic golf tournament.

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APMRF Newsletter

A Goal for Life - The Newsletter of the Ara Parseghian Medical Research Foundation.


Newsletter
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A Message from Ara

Our hearts are broken. The pain of losing our three youngest grandchildren is almost unbearable.


Ara Message
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Features

 VTESSE VTS-270 Clinical Trial: The Patient Experience

See a day in the life of Niemann Pick Type C Disease patients, their families and health care providers as they participate in the VTS-270 Phase 2b/3 clinical trial. https://vimeo.com/160183927

-Niemann-Pick Type C is a genetic, cholesterol storage disorder that primarily strikes children with death occurring before or during adolescence. There is also an adult onset form of the disease.

The Ara Parseghian Medical Research Foundation is a non-profit organization dedicated to funding medical research projects to find a treatment for Niemann-Pick Type C (NP-C) disease. The Parseghian Foundation is named in honor of Ara Parseghian, the much beloved and well-known Notre Dame Football Coach, whose three youngest grandchildren were diagnosed with NP-C in 1994.

 

Sadly, the Parseghian family has lost Michael, Marcia and Christa to Niemann-Pick Type C disease.  Their hearts will be forever broken.

Their resolve, however, to continue the fight against NP-C disease is not broken.  The Parseghians and thousands of volunteers and friends across the US and around the world are raising funds and pushing medical research so that a treatment can be found.

Please help us in this valiant effort so that everyone afflicted with Niemann-Pick around the world can live to realize their hopes and dreams. Thank you.

.............Helping Kids

Hope for KidsWe Need Your Help!
.Angel Twins
.BReaK Thru Fund
.Fight For Jessica
.Help Kevin
.Hadley Hope
.See More >>

     

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© 2008 Ara Parseghian Medical Research Foundation
Mailing Address: 4729 E Sunrise Dr. #327, Tucson, Arizona 85718-4535,

Phone: (520) 577-5106 Fax: (520) 577-5212, E-Mail: promano@parseghian.org