The role of the National Board of Directors is to speed the search for a cure for Niemann-Pick
Type C by funding research and promoting
interaction among scientists working on NP-C and related disorders.
Ara Parseghian, Chairman of the Board
Head football coach, University of Notre Dame 1964 - 1974, Northwestern University 1956 - 1963, Miami University (Ohio) 1951 - 1955
Past National Chairman, Multiple Sclerosis Society
Cindy K. Parseghian, President
M.B.A., Kellogg Graduate School of Management
Board of Directors, Translational Genomics Research Institute (T-Gen)
Michael A. Parseghian, M.D., Secretary/Treasurer
M.D., Northwestern University, Orthopaedic Residency, University of Arizona
Practicing physician, Tucson Orthopaedic Institute
Bernard A. Buescher, Esq.
Colorado State Legislator
Former Executive Director, Colorado Department of Health Care
Policy and Finance
James F. Burke, Esq.
Practicing Partner, Burke, Kinsky & Van Buren, P.C.
Corporate Counsel and Secretary, Ohio Cellular
Arthur J. Decio
Chairman, Skyline Corporation
Trustee, University of Notre Dame
Michael S. Parmacek, M.D.
Director, Scientific Advisory Board, APMRF
Associate Professor of Medicine and Chief, Division of Cardiology, University of Pennsylvania
Ara M. Parseghian
Princeton University, 2006 Graduate
Jonathan Jacoby
Associate Board Member, NP-C Father
Executive Director, Hide and Seek Foundation for Lysosomal Disease Research
